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Any Advice

Submitted by an LD OnLine user on

My 14 year old daughter has L/D.
At the age of one she contracted septicemia, pnumonia and went into a coma
For the following 4 years i tried all ways to get her consultant to sit with me and explain exactly what problems she was left with. For the past 8 years her consultant has told me she was born with L/D.I moved away from the area and recently found out from her GP that she was left with L/D due to the coma she was in.Untill I moved i had accepted what he told me but now feel my daughter has been cheated out of finding an answer and the best way of dealing with her problems also I want to know exactly what is wrong with her.
I live in the UK and things are much behind the USA.Are our rights the same as yours and what can i do next. I have asked to be reffered to a neurologist but have been denied as tyhe National health service do not offer this service.I can`t afford to go private.
HELP!!!!!

Submitted by Anonymous on Wed, 01/30/2002 - 9:45 PM

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You could check with the British Dyslexia Association for information. (Your child might not show evidence of dyslexia, but quite possibly one of the site’s Help Line contacts or local chapters could assist you.) You will also likely find general info. there on your rights. Go to www.bda.dyslexia.org.uk. (I am Canadian, and the British site was one of the first I found when I first learned my son is LD. It is an excellent site. I have since discovered the Canadian Learning Disabilities Assoc. and joined a local chapter. They provide wonderful help and referrals over the phone, and I would guess that the BDA local chapters operate much the same way. Good luck!

Submitted by Anonymous on Wed, 01/30/2002 - 9:46 PM

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You could check with the British Dyslexia Association for information. (Your child might not show evidence of dyslexia, but quite possibly one of the site’s Help Line contacts or local chapters could assist you.) You will also likely find general info. there on your rights. Go to www.bda.dyslexia.org.uk. (I am Canadian, and the British site was one of the first I found when I first learned my son is LD. It is an excellent site. I have since discovered the Canadian Learning Disabilities Assoc. and joined a local chapter. They provide wonderful help and referrals over the phone, and I would guess that the BDA local chapters operate much the same way. Good luck!

Submitted by Anonymous on Thu, 01/31/2002 - 1:21 AM

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I submitted twice because my previous post did not show up initially, and now, upon checking, I see it still isn’t there so am submitting this to alert you to look for the replies after checking on your initial message. Hope this one shows up on the main board!

Submitted by Anonymous on Thu, 01/31/2002 - 3:55 AM

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Maybe I am being foolish but it sounds like anoxia (loss of oxygen) resulting in brain injury which could be LD. A coma could be related to the cause as well, something like a stroke could have occurred. Seriously, this warrants a visit to a neurologist, the cause and effect appears obvious to me.

a speech therapist

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