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I NEED ADVICE FROM PARENTS

Submitted by an LD OnLine user on

I have a few questions I’m doing for my thesis. I am a mother of an LD child with autistic tendencies and I was hoping some parents could answer the following questions:
Is your child a boy or girl?
What is your relationship to the child?
What is the name of your child’s disability?
What is your child’s current age?
At what age was your child “officially” diagnosed with LD?
At what age was your child when you became seriously concerned?
What was the first clue that raised concerns about your child?
Did you ever seek advice from others regarding your child?
What was the WORST advice you rec’d from someone else?
What was the BEST advice you rec’d from someone else?
If you could offer one piece of advice to ALL parents of preschool age children concerning potential LD what would it be?
What is your household income?

Submitted by Anonymous on Tue, 11/26/2002 - 12:24 AM

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My child is a boy.
I am his mother.
His official dx is: Pervasive Developmental Disorder, not otherwise specified.
He is currently 10 years old.
He was officially diagnosed at the age of 4 1/2
First became concerned before the age of 1
First worry was lack of regard for faces. He was always happy and content to be by himself. Became more concerned when he lost what speech he did have at about 13 months of age. Other worrisome behavior, banging head, humming, spinning, screeching, turned away from people (would put his back to you before you picked him up), lack of speech, lack of non-verbal communication.
First brought concern up before child was 1. Orginally thought he was deaf since he acted as if he did not hear. Could not get any one to listen until he was almost 2. I intentionally dropped a very heavy book behind him, he did not startle, so was refered for hearing test. He did have a 60 percent loss but the physician who did his ear surgery felt more was going on, so gave us more referals.
Worst advise: “take him home and love him for who he is because he will never admount to anything.” To further elebrate this same professional went on to say “you will be lucky if he potty trains by 5 and IF he EVER get any functional speech/language.
Best advise: Get a second opinion.
My advise to others: You know your child better then anyone else—get someone to listen when you first have concerns.
Income: middle class.

Submitted by Anonymous on Tue, 11/26/2002 - 4:00 AM

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My child is a boy.
I am his mother.
His LD is Auditory Processing, Dysgraphia
His current age is 17 years.
Diagnosed at age 6 1/2 years.
I became seriously concerned when he was 6 years old in kindergarten.
My first clue that something might be wrong was early in age….about 15-18months. He was slow on all his motor developmental milestonesn (sitting up, crawling, walking, talking. He only spoke 6 words clearly at age 2.
I sought advice after preschool was over.
I was given tons of worthless advice over the years. I guess the worst was from the high school “career counselor” who suggested he get into small engine repair or some “trade” and not worry about taking a foreign language or any difficult math in high school as he’ll never “make it.”
I don’t think I ever heard positive advice from anyone. The best advice came from my heart. I knew he could do anything he wanted. It might not come as easy for him as it does for others, but he could achieve his dreams. He is now a senior in high school, has completed 2 years of a foreign language and has made “A’s” and “B’s” in all his math classes and is currently in Triginometry.
My advice to other parents would be not to listen to ANYONE who wants to tell you what your child won’t be able to do or achieve. You know your child better than anyone. READ READ READ all you can about LD’s. Most teachers do not know that much about LD’s and they don’t care to find out. Be an advocate for your child and educate teachers about the potential each child has.
Household income $125,000. Thanks so much for listening and wanting to
learn. Please educate others with your findings!

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