Janice and all-
Just thought I would update you on the IEP for nick. His actual IQ came out better than the testing that we did last summer-I believe in the low 80’s overall. There still was not enough discrepancy to say he is learning disabled, but because he has add(inattenative type) and is not progressing, Dr. wrote letter stating this and nick was put in resource room for extra help and also getting extra half hour of speech weekly. Pschycologist said that definitely has emerging learning disability-stating that he is a very slow processor and that makes it very difficult. I will be taking him this summer to be tested for CAPD since they say he is too young to test right now(he is 6). I have to say the fighting with the school was worth it because he is doing better-little steps of improvement, which is fine. I know he talking a bit more too,so I think he is getting a little more comfortable and at ease(not crying half as much too!!) I know that I am not out of the woods with the school and I am sure I will have to keep on them to make sure all is going okay, but for now things seem to be going well. Thanks for all the advice, I appreciate it!!!
bye for now,
Tammy
Re: my son's IEP
And make sure you get it all written in black and white, just in case the school “forgets” what they told you.
Re: my son's IEP
Getting everything written into the IEP is critical. Be specific about the jargon and your understanding of what it all means. What may seem simple and uncomplicated may have a different interpretation in “school district definitions” as oppposed to Miriam Webster and the general public’s understanding. Do not be shy about asking what each item “means” and have it explained to you so you are comfortable with understanding it all. If it happens later, that there is a question or “misunderstanding” as to what you “thought it meant” versus what the district says it means, you simply want to be clear about this.
It is not unheard of to tape record a meeting like these, with proper advance notice (24 hrs), with the simple explanation that it is too much for you to remember and somewhat complicated and you wish to review all that transpired later on.
Good luck and continue to maintain a proper perspective, your child’s education.
Andy
Re: my son's IEP
Just thought I would let you know that I also have a daughter, 8 years old and is also dyslexic/CAPD. I went thru a really hard time with the school. Getting diagnosed early is the ticket-schools don’t believe this though! Principal don’t like me much anymore, but I don’t really care!!!
Re: CAPD diagnosis
Hi everyone,
You all mention diagnosis for CAPD. Was it done through the school? I have recently started researching this and it certainly explains my son. I always knew there was more to his story that would explain why he continues to struggle even with services. I’ve been telling my husband that we are missing a piece to his puzzle and I really think CAPD is it. Did you all have to request that he be tested for it specifically? I’ve heard many schools don’t want to touch it because it is a term like “dyslexic” where they try to avoid that word in relation to school findings. I’m really determined to get CAPD evaluation either in school or out. In his intial evaluation he did not have a speech/language eval which baffles me since his disabilities are language based (dyslexic) Any advice? Or am I just confused?
Re: CAPD diagnosis
Hi, my daughter,8 years old is dyslexic/CAPD. I had a outside evaluation and they had referred me to audiologist that specialized in that. I have read alot of literature on this and I am sure my son is CAPD as well. I have heard they don’t like to test for this before age 7. I am having testing done this summer. As far as school testing for CAPD, I am sure they don’t!!!!! Good luck!!!
Tammy
Re: CAPD diagnosis
My older son was dxed mild to moderate capd in 1st grade by a slp in a military hospital setting. Subsequent school testing in 2nd and 4th grades revealed some auditory problems but not where they found a deficit. His 6th grade testing found only ‘processing problems’, since it also said he had visual strengths I believe it to still be the auditory to be the problem. He also is add/inattentive. My understanding from reading here on the bb’s is that probably an slp can screen but a definitive dx would come from an audiologist who specializes in testing for this. School might screen with the slp per speech/language testing but further eval I don’t know about.
Re: CAPD diagnosis
Well, you need to find a person who is trained in this and experienced. I think it needs to be an audiologist, at least, that’s who gave the evaluation (NOT SCREENING) to my son.
Your school MUST provide the testing.
.
Also, find out more about it before you just “pick” somebody, if you intend pay privately for a second diagnosis.
My sister had a CAPD eval done at the Cleveland Clinic for her son…they are well known and reputable…they completely blew it, said her son had no CAPD issues. I could not believe this. The two second opinions said this was completely erroneous, that he has a host of disabling CAPD issues. A waste of 8 months.
Re: You aren't confused
You said, “In his intial evaluation he did not have a speech/language
eval which baffles me since his disabilities are language based…”
It sounds like you got a poor multifactored evaluation. You have two ways to go…you can either request additional evaluations from the school (not my choice of options), or you can disagree with the tesing results they gave and request an IEE (independent Educational Evaluation) at public expense.
Write back if you want more info.
Re: CAPD diagnosis
I know that I had both children tested outside of school-I was fortunate that my health insurance covered most of it. I went to through Beaumont Hospital in Royal Oak,Mi-VERY GOOD. I had educational/psycological, as well as speech/language eval. I was referred to The Michigan Institute of ENT and had CAPD eval there with audiologist. and they were right on! I did have to wait longer to get into these places verses the schools doing it but I feel it was worth it!
Tammy…My very bright son is now 15. When I read his CAPD report (age 12), I can’t comprehend that he could function at all given his issues (dyslexia as well). He did not score highly on his IQ scores either, and because I didn’t know what was what, he didn’t get the important early remediation he needed. Keep on pushing forward for your son’s proper education.