This is a [oll to present information “from the field” to people to better help them understand how it is for us who live with autism daily. Please do not reply here, but clip and paste into email and send directly to Liz.
Hi
This poll was developed to endeavor to answer some of the questions posed by families of newly diagnosed children. It will be used (with no names of course) in a presentation in February to that group. The workshop is being sponsored by the Autism Society of York Region, and will be presented by myself, Early Intervention Services and Behavior Management. For those of you who don’t know me, I am mom to a 6-year-old son with autism and I work in partnership with the autism society to help address the needs of parents like you through our Parent Empowerment Workshops.
Please feel free to distribute this poll to others you know and have them email their response (and/or questions) to
.
Thanks so much for helping out!
1. How many children do you have with Autism Spectrum Disorder or PDD? (Note: this only includes: autism, PDD, PDD-NOS, Asperger’s Disorder, Rett’s Syndrome, CDD, LKS)
2. How many children do you have in total?
3. Does your ASD child have a co-existing disorder? (i.e. Bipolar, Developmental Delay, seizures, ADD, ADHD, etc.) If so, what is it?
4. At what age was your ASD child toilet trained?
5. At what age did your ASD child start to use speech functionally?
6. At what age did your ASD child learn to communicate?
7. Does your child have echolalia?
8. What has been your biggest struggle?
9. What has been your biggest reward?
10. School aged ASD children: is your child in a self contained class or integrated?
11. Does your ASD child only eat a few foods by choice? What are those foods?
12. Does your ASD child have a sensory integration dysfunction?
13. In your family, who does most of the research, appointment co-coordinating, etc., the mother or the father?
14. Are you single, married, separated or divorced?
15. Have you ever had counseling to help deal with your child’s diagnosis or issues surrounding it?
16. Did you find your ASD child improved drastically at a certain age? If so, what age?
17. What has been the most helpful therapy you’ve tried with your ASD child?
18. For adult (over 18) children with ASD: What age did your ASD child graduate high school? What are his/her living arrangements?
19. What has been the most helpful form of support you’ve found?
20. Please name the most helpful book and Internet website on ASD you’ve encountered.
21. Please name the biggest advantage you know to having a child with ASD.