N.V.L.D. (book)

Yo Sian! Way To Go! I’m excited about your project! As I do not suffer from NLD, (I note that you refer to it as “NVLD”) and know nothing about it, perhaps you could share with me, and with everyone else who is not NLD what being an NLD is like, ie, What are its main symptoms etc. I am embarrassed to admit this, but I have only recently become aware that there is such a thing! Anyway, I’ll be talking with you.

Rob

5-3-02

The main symptoms of N.V.L.D. are: Outward appearance: One might seem very stiff, uptight, or come off as especially nervous or over anticipating the behavior and/or motive of another. I have had to work on breathing techniques and rehearsing a situation to gage what it might be like before I am in it.(Social interaction) I tend to read too much into a situation. This can cause a person with N.V.L.D. to be extremely anxious, to imagine a problem that doesn’t exist, or become paranoid to the point of just wanting to isolate.(Social phobia, extreme anxiety, and major depression are secodary symptoms caused by the cognitive deficit.) I take Zoloft to treat the anxiety and depressive symptoms that I’ve experienced due to N.V.L.D. I have had to learn to physically loosen up, and retrain my mind not to worry and obsess. If I need a reality check, I run the situation by my councilor and close friends who are there for me. It helps most to talk things out with people who care so that things don’t get blown up in my head. Than I have a much clearer perspective on the situation.eg. Is that person just in a bad mood that day? Maybe this is just the individual’s personality. Is this person generally known as being difficult or maybe having health problems etc. I have to have things spelled out to me verbally. This is how I am able to judge a situation.
To learn more you can type in Keyword:Nonverbal Learning Disabilities and you will get several links to this subject. There are some doctors who have posts on N.V.L.D. See ya!
Sian

Thanks! Will do.

Rob

And, thank you, AA!

Rob

Hi AA:

Oh yes I have many questions, mostly about myself!! I just got finished retesting for LD. It did show some minor difficulties with “Broad reading” and “Broad Math”. However, even after the discussion with the evaluator, it still doesn’t make much sense! Thank goodness my counselor is a specialist in Learning Disabilities (Masters Degree)

Is NVLD not a commonly known disability? My test scores seem to indicate that I would have this (much more developed verbal skills than perceptual-organizational skills). Unless I’m missing the NVLD concept.

I’m also noticing that NVLD seem to overlap with some of the symptoms of Auditory Processing Disorder. Sign of both of these disorders that I’ve been reading seem to describe me in some aspects. However, my testing did not seem to measure any auditory processes. My psychologist was also surprised at this. I strongly believe that I have NVLD and/or CAPD. Is it possible to have both?

I’m sorry, I’m just bugged by the fact that my test results didn’t give as complete a picture as I’d hoped. My husband thinks I’m crazy, but I think it would help in a job. My accuracy in my job has gone down the toilet as of late, so I need to find a better fit FAST!!

Anyway, Sian, good luck with your book!! Thanks to everyone on this thread also for the web sites. I will be checking them out tonight.

Good luck!!

Christine

Thanks AA!! I will check out the sites this weekend. My evaluation only hit upon educational aspects, nothing vocational related. My counselor will hoepfully be able to help me with that. My evaluator did say that I definitely should not be a data entry clerk (my job). I’m starting a process of looking for a new job. The tedious nature of my job is really getting to me. Besides, it’s really becoming hard on my eyes.

I’ll let you know how things go. Again, I really appreciate your help!

Christine

Hi AA,

I’ve run into you before (NLDontheWeb forum? - I’m RiversEnd). I finally got a formal NLD diagnosis for my son. It seemed to do the trick at school, and he actually has some accommodations he needs.

I read the article by Dr. Tillery, and am thrilled and excited about that study. My son now has formal diagnoses of inattentive ADHD, APD, and NLD. It is truly fascinating to see that others have identified the interelationships of these disorders, and are researching them.

Lil

First of all Sian way to go. I think it’s great that you are writing a book on this. I can relate to many of your symptoms. Not reading facial cues well, etc. I have this too. My occupational therapist calls this visual defensiveness. I am 44 and found out about my NVLD two years ago. Rather than repeat this over again I will refer you to my posting in answer to Angel dated 7/17/02. I also have issues with where I am in space, motor skill delays etc. Today it is treated so differently and thankfully there is early intervention. I am the only adult I have seen at either my occupational therapist or vision therapist’s office who is being treated for the same issues as the kids. There is also a great website for Sensory Integration Disorder which I can not remember off the top of my head right now. I do not have an auditory processing problem, but since I am also ADHD and take medication some of my issues are now easier to manage. I don’t tend to be as tense and anxious, and I am much more able to read facial cues.

I am going to record a video for one of the persons mentioned on the sensory integration site Dr. Lucy Miller about what it means to have it as an adult. Anyway I hope this helped you. If I can help you let me know. I am on aol.

Marleedrew