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Hi new here with some ?'s

Submitted by an LD OnLine user on

My Son is five years old,with LD,he is only now talking but recently made alot of progress.

The thing that worries me is his repetitive speech,he will ask the same question over and over,it can last ages and ofton results in a tantrum.

He asks for a drink and he will ask over and over and panics about it,it is the same with everything.

I spoke to his teacher about it today and she said that he isn’t like it at school so therefore he is playing me up,do you think there is any truth in it?

I have heard of CAPD but I don’t know much about it yet so is repetitive speech a sign of it? it is really frustating me as no one seems to be taking it seriously.

Submitted by victoria on Mon, 09/20/2004 - 11:05 PM

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Repetitive speech is more a sign of PDD. How was evaluated LD? Who tested him? What was the diagnosis?

The person/people who tested and diagnosed him should take some time and explain to you what the diagnosis is and what it means. Take some time and make an appointment and get as much of an explanation as you can. Then you can come back here and read LD in Depth — lots and lots of good info, just click on the link above — and ask more questions.

Submitted by Anonymous on Tue, 09/21/2004 - 4:30 AM

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Could if be that the child didn’t get what they wanted? My child would sometimes say the wrong thing, such as juice when she wanted milk. It would take a lot of repitition of the request and my guessing to figure it out. And if I couldn’t figure it out it she would get stuck and have a tantrum. Just a thought-

Submitted by Anonymous on Tue, 09/21/2004 - 7:34 AM

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[quote=”auditory mom”]Could if be that the child didn’t get what they wanted? My child would sometimes say the wrong thing, such as juice when she wanted milk. It would take a lot of repitition of the request and my guessing to figure it out. And if I couldn’t figure it out it she would get stuck and have a tantrum. Just a thought-[/quote]

Nope,he is like it with everything,he will be watching TV and he will say “we are watching spider man arent we?” and even tho it will be on he will still ask me if that is what we are watching,thats just one example.

[quote]Repetitive speech is more a sign of PDD. How was evaluated LD? Who tested him? What was the diagnosis?[/quote]

His specialst tested him,and his SLP,he has had many evaluations,they said he doesn’t have any form of Autism as he makes eye contact :roll:

The diagnosis was speech delays and Learning disabilities.I am seeing her on the first of next month,I am thinking of getting a second opinion though.

Submitted by Anonymous on Tue, 09/21/2004 - 3:17 PM

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but I think you are wise to search for a second opinion — it seems that your first specialist has not given you enough information. However, educate yourself first! Read up on all the LD’s, (lots of info on this site) then, if you see his behaviours and traits as being on the autism ‘spectrum’, (or if he fits in some other ‘group’) that will tell you what type of specialist to search for. Ideally, you want someone who has lots of experience with kids who are similar to yours, especially if they will be recommending treatment/interventions.

Your first specialist is not necessarily wrong, but sometimes a general educational psych (if that is who you used) or even a pediatrician might not see enough kiddos who are ‘like yours’, and may mistake or miss certain traits — or maybe you just need more information. The behaviour you describe could be many things — including the language delay as someone else said, or that you don’t have all the info via dx that you need, as Victoria said.

One thing is, regardless of the dx — kids are very individual and unique, and LD kids are even more unique than the rest!

You have come to a great place for support and information…welcome!

Submitted by victoria on Tue, 09/21/2004 - 4:58 PM

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This diagnosis is something to discuss with des or Dad on this site, as they have more experience with the autism spectrum. Saying yes or no to a complex diagnosis on the basis of one single trait — “He doesn’t have an autism spectrum disorder because he makes eye contact” — is generally not appropriate and looks like a not-very-professional evaluation. Talk to the people who know more about these things, read up, and prepare to be an advocate for your child.

Submitted by des on Wed, 09/22/2004 - 2:37 AM

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Absolutely, autistic children (even severe ones, which this doesn’t sound like) can have eye contact. This is a total myth, sad to see it propagated by a professional like this. But I dont’ think your doctor was able to tell if this is PDD or no.

OTOH, speech repetition by itself wouldnt’ be so significant (I don’t really think that Victoria was implying this necessarily— perhaps that the repetitive speech is more similar to PDD than other conditions), but combined with other things— how is he with his peers? Does he have a single interest (or repetitive behaviors) that sort of thing?

Go take a look at Barb Kirby’s page:

http://www.udel.edu/bkirby/asperger/

This is on Aspergers and some links to related conditions.
If they fit, I think I’d get another opinion. Many people go thru several opinions so I would check out here (or over there) re: professionals.

—des

Submitted by victoria on Wed, 09/22/2004 - 4:58 AM

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des — what suggested PDD to me was the combination of extreme repetition, long duration, and panic/tantrums, which reminds me of the one kid I met with this disorder. OF COURSE the first recommendation is to get this kid propertly evaluated by a person with experience in the field, *not* just long-distance guessing by us amateurs. It could be lots of other things too — CAPD and panic when he doesn’t hear the response properly?

Mom/guest, please go get that second opinion, and make sure the person giving it has some experience, not just armchair reading.

Submitted by KarenN on Thu, 09/23/2004 - 1:07 AM

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It could also be a compulsion. My son gets compulsive and perseverative when he’s anxious and/or excited and he’s definitely not on the spectrum.

Submitted by Anonymous on Thu, 09/23/2004 - 6:52 PM

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Maybe because he has had speech issues he has been hard to understand so he is asked to repetitive talk and ask the questions. Looking back a lot of times my ds had to ask his question multiple times because we couldn’t understand him. It was frustrating to him especially since he knew what he was saying- we just couldn’t get it. IF that appears to be the problem one thing that helped us was the repeat the part of what we knew and then get him to finish what he was saying. If that is too frustrating for him and only encourages the behavoior possible consider a communication board with pictures. I may be way off just trying to help.

Lori

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